Sr. Manager, Patient Advocacy, Global Rare Diseases

Location: Based in Boston, Massachusetts; hybrid work arrangement with approximately 40% national and international travel

Annual base pay: $128,070–$156,530

Company

hirify.global is an international research-focused biopharmaceutical group developing and commercializing medicines and patient support services, including treatments for rare and ultra-rare disorders.

What you will do

• Contribute to the global rare disease patient advocacy strategy and execute programs across the Americas.
• Develop plans to engage patient communities in the United States and Canada while coordinating with the LATAM patient advocacy team.
• Build and maintain long-term partnerships with patient advocacy organizations and other stakeholders.
• Design and implement educational programs, advisory boards, patient speaker engagements, policy advocacy initiatives, and related partnerships.
• Represent the patient perspective in strategy meetings and educate cross-functional teams on patient needs and insights.
• Conduct stakeholder engagements in accordance with legal, compliance, and regulatory requirements.

Requirements

• 5+ years of experience in a biopharmaceutical environment, including at least 2 years in rare disease and patient advocacy.
• Bachelor’s degree in social science, public health, science, or a related field.
• Strong communication, networking, listening, interpersonal, project management, and program management skills.
• Ability to build trust with diverse stakeholders and collaborate across internal functions and external organizations.
• Understanding of drug research and development, regulatory requirements, compliance, and disclosure guidelines.
• Must be based in Boston and able to travel nationally and internationally approximately 40% of the time.

Nice to have

• Advanced degree.

Culture & Benefits

• Development opportunities with access to training and professional resources.
• Comprehensive healthcare programs and work-life balance initiatives.
• Relocation support and tax assistance services for foreign colleagues.
• Flexible working arrangements and remote work options within the role’s location framework.
• Performance bonuses and market-benchmarked benefits.